Searchable abstracts of presentations at key conferences in endocrinology

ea0094op4.4 | Thyroid | SFEBES2023

Incidental thyroid nodules on CT Angiography in patients presenting with acute stroke: incidence and clinical outcomes from a regional stroke centre

o Connor Christine , Wiggam Ivan , Ellis Peter , Cvascuic Titus , Harfield Alyson , Dooht Sarine , Ahmed Ammar , McKenna Jordan , Lynsey Jessica , Sengupta Shyrea , Gordon Patricia , Alexander Louise , Kerr Enda , Fearon Patricia , Patterson Cathy , Roberts Gerallt , Mc Ilmoyle Jim , Johnston Philip C

Background: CT Angiography (CTA) is a frequently used modality of imaging for assessment and diagnosis of patients presenting with acute stroke. There is a paucity of data on management guidelines for the presence of incidental thyroid nodules found on CT Angiography in patients presenting with acute stroke.Methods: A retrospective analysis was conducted on 2092 patients presenting with acute stroke, identified through t...

ea0038p309 | Pituitary | SFEBES2015

Developing a pituitary distress thermometer (PDT) – a means to improve patient quality of life

Jackson Sue , Norman Alyson , Crown Anna

Introduction: Patient distress may be associated with a reduced quality of life (QoL), poor adherence to treatment and lower satisfaction with medical care. Best practice guidance recommends that distress is assessed at key points within the patient-care pathway. The aim of this study was to develop a pituitary-specific distress assessment tool.Method: Working with the Pituitary Foundation, a Wellbeing Survey was generated, comprising 36 pituitary-specif...

ea0013p113 | Clinical practice/governance and case reports | SFEBES2007

Adrenal emergencies in treated addison’s disease

White Katherine , Wass John , Elliott Alyson

Adrenal crisis is a life-threatening emergency requiring immediate treatment with high glucocorticoid doses. In diagnosed Addison’s disease between 3.8% and 29% of patients are estimated to need emergency hospital treatment per annum (Arlt & Allolio, 2003; Fleming & Ostergaard Kristensen, 1999).In 2003 we conducted the largest international survey of diagnosed Addison’s patients to date (N=868), enquiring about the causes and fre...

ea0013p114 | Clinical practice/governance and case reports | SFEBES2007

Inheritance in autoimmune addison’s: the extended family profile

White Katherine , Wass John , Elliott Alyson

Autoimmune hypoadrenalism (Addison’s disease) is a rare condition with a European prevalence of up to 140 per million1. It frequently occurs in association with other organ-specific autoimmune diseases, both endocrine and non-endocrine. These conditions are recognised to occur in the extended family, but their prevalence has been hard to determine, because of the rarity of the disease.In 2003 we conducted the largest international survey ...

ea0050p282 | Neuroendocrinology and Pituitary | SFEBES2017

Understanding the psychosocial needs of pituitary patients: a survey of Pituitary Foundation members

Forrest Hannah , Norman Alyson , Jackson Sue , McBride Pat

Background: Management of pituitary conditions is notoriously difficult and patients often experience high levels of distress which are often not addressed by health professionals. As a result, pituitary conditions have been found to have a large negative impact on quality of life. The aims of this study were 1) to identify the psychosocial symptoms associated with pituitary conditions, and 2) to identify any differences in symptomatology...

ea0050p296 | Neuroendocrinology and Pituitary | SFEBES2017

Connected, supported, informed: experiences & benefits of membership of the pituitary foundation

Underwood Anneliese , Norman Alyson , Jackson Sue , Forrest Hannah , McBride Pat

Background: Pituitary conditions have been found to have a significant impact on quality of life. As such it is important that patients have access to support services to ensure their ongoing physical and psychological needs are met. The aim of this study was to explore the experiences of patients with pituitary conditions who are members of the Pituitary Foundation to better understand how the Foundation supports their needs.<p class...

ea0050p282 | Neuroendocrinology and Pituitary | SFEBES2017

Understanding the psychosocial needs of pituitary patients: a survey of Pituitary Foundation members

Forrest Hannah , Norman Alyson , Jackson Sue , McBride Pat

Background: Management of pituitary conditions is notoriously difficult and patients often experience high levels of distress which are often not addressed by health professionals. As a result, pituitary conditions have been found to have a large negative impact on quality of life. The aims of this study were 1) to identify the psychosocial symptoms associated with pituitary conditions, and 2) to identify any differences in symptomatology...

ea0050p296 | Neuroendocrinology and Pituitary | SFEBES2017

Connected, supported, informed: experiences & benefits of membership of the pituitary foundation

Underwood Anneliese , Norman Alyson , Jackson Sue , Forrest Hannah , McBride Pat

Background: Pituitary conditions have been found to have a significant impact on quality of life. As such it is important that patients have access to support services to ensure their ongoing physical and psychological needs are met. The aim of this study was to explore the experiences of patients with pituitary conditions who are members of the Pituitary Foundation to better understand how the Foundation supports their needs.<p class...

ea0015p308 | Steroids | SFEBES2008

Adrenal emergency is a regular event for treated Addison’s patients

White Katherine , Wass John , Elliott Alyson , Arlt Wiebke

Acute adrenal insufficiency requires immediate treatment with high-dose glucocorticoid and represents a life-threatening emergency. Previous research suggests that primary hypoadrenalism patients (Addison’s disease) are more vulnerable to adrenal emergency than steroid-dependent pituitary patients (Arlt & Allolio 2003).In 2006, we surveyed the membership of the UK Addison’s disease Self-Help Group, comprising 982 hypoadrenalism patients, an...

ea0015p329 | Steroids | SFEBES2008

Use of placebo for withdrawal of steroid therapy is contraindicated in adrenal insufficiency

White Katherine , Elliott Alyson , Hawks Noel , McEntegart Mary

Adrenal insufficiency (AI) patients who are deprived of regular steroid replacement therapy rapidly become unwell. However, the interval for which AI patients might safely be withdrawn from steroid medication for clinical purposes, such as re-assessment of adrenal reserve, is largely a matter of speculation, since it would be difficult to construct an ethical trial on this matter. Valuable insights into this dilemma can be gained from the case studies of an early clinical rese...