Searchable abstracts of presentations at key conferences in endocrinology

ea0099ep449 | Pituitary and Neuroendocrinology | ECE2024

Patient reported perspectives of disease burden in acromegaly: data from the acromegaly community patient-focused drug development meeting

Agrawal Nidhi , CJ Yuen Kevin , Bonert Vivien , Huang Wenyu , Sisco Jill

Acromegaly is a rare disease most commonly caused by benign pituitary adenomas producing excess growth hormone. A profound mismatch between biological control and symptom control creates a high disease burden despite optimal disease management. To learn more about the patient experience, Acromegaly Community hosted a virtual Externally Led Patient-Focused Drug Development meeting in January 2021. There were 304 registered attendees, including 128 people with acromegaly and the...