ea0085p69 | Miscellaneous 2 | BSPED2022
Rees Sophie
, Moss Susanna
, Pryce Rebekah
Introduction: Prader Willi syndrome (PWS) is a complex neurodevelopmental genetic condition which is characterised by hyperphagia, endocrine dysfunction, behavioural and psychiatric issues. Current literature recommends a multi-disciplinary approach to PWS management to tackle its multi-faceted manifestations. No previous study has examined the views and satisfaction levels relating to the services provided for children with PWS in Wales.Methods: Semi-st...