AIMS: The Pituitary Foundation (a national UK Support Group)
undertook a questionnaire of its members to solicit patients' views on their experience of growth hormone replacement (GHR). This resulted in a lay submission to NICE regarding GHR in adults.
METHOD: A questionnaire was mailed to members known to be receiving GHR. 78% of these (303) were returned. In addition, a further 86 completed questionnaires were received following an article in their quarterly newsletter 'Pituitary News'.
RESULTS: In 158 replies 'increased energy' was cited as the key difference GHR had made with 140 citing 'well-being'. 83% reported increased energy levels and 69% reported improved mood and/or reduced anxiety. 56% had found that GHR improved their ability to work. 68% reported that the quality of life of those around them had improved. Adverse effects were noted by 18%. Funding problems were reported by 30% and 16% had experienced withdrawal of GHR.
CONCLUSION: The collective data provided evidence for a major positive effect on quality of life issues with particular emphasis on energy levels, ability to work, relationships with the family and general well-being.
08 - 11 Apr 2002
British Endocrine Societies