Introduction: In this audit we explored the treatment and follow up of pre-2016 cases against the 2016 European Society of Endocrinology (ESE) guidelines on PPGL follow-up.
Results: Demographics of the patients revealed 50% were male with median age (45±5), 82% of patients underwent surgery of which 73% were diagnosed with adrenal phaeochromocytomas & 27% with paragangliomas. Only 64% of surgical cases were followed up in clinic in the last year. Of all surgical cases only 73% had evidence of undergoing genetic testing. In the first year post surgery the following appropriate biochemistry screening was performed: Chromogranin A=36.5%, (27% unknown), Urinary MN or catecholamines=64% (27% unknown), Calcium=64% (27% unknown), PTH=56%, (unknown in 27%), Calcitonin=46% (27% unknown), CEA=0% (27% unknown). In the first year post surgery between 9% and 27% of patients underwent USS/CT/MRI/MIBG/PET scan of neck or abdomen appropriately.
Discussion: The recommendations made in these guidelines have been implemented locally and a local registry of cases is in development to improve follow up of cases (see poster for further details).
20 May 2017 - 23 May 2017