Endocrine Abstracts (2017) 49 GP117 | DOI: 10.1530/endoabs.49.GP117

The Swedish Pituitary Register Nursing Group (SPRNG) Projects and Experiences

Maria Forsgren1, Caroline Alkebro2, Margareta Lindgren3, Helena Wik4, Maria Wärn5 & Christina Dahlgren6


1Uppsala University Hospital, Uppsala, Sweden; 2Örebro University Hospital, Örebro, Sweden; 3Norrland University Hospital, Umeå, Sweden; 4Sahlgrenska University Hospital, Gothenburg, Sweden; 5Karolinska University Hospital, Stockholm, Sweden; 6Linköping University Hospital, Linköping, Sweden.


Background: The Swedish Pituitary Register (SPR) is a national quality register founded in 1991 by the Swedish Pituitary Group and it provides important data in the continuous quality assessment and improvement work within the Swedish health care system.

The Swedish Pituitary Register Nursing Group (SPRNG) was formed by nurses at the University Hospitals, working with the register, in 2011.

Purpose: To increase the coverage rate and improve the data quality in the register.

To strengthen the endocrine nurse role and encourage and promote the nurses to own register projects.

Methods: The SPRNG, consisting of endocrine nurses, one responsible for the register at each University Hospital. Meetings are performed 1–2 times /year. The SPRNG is working for the same routines considering the register and is actively working with projects in the SPR.

Results: Since the SPRNG was started the coverage rate and the reporting speed in the SPR have increased. Several nurse projects during 2016. Implement PREM and disease-specific PROM variables. User Survey in the register. Register data template for the hospitals operations managers and for the public to increase the knowledge of this patient group.

A study ‘Time from first symptoms to diagnosis’, where approximately 600 patients with pituitary tumours (Acromegaly, Mb Cushing, NFPA and Prolactinomas) are included, will be compiled 2017. The purpose of this study is to find these patients earlier and to identify how we can do that.

The SPRNG have been active at international conferences with several abstracts. Meeting and sharing experiences of the register with finish endocrine nurses.

Conclusion: The SPRNG has contributed to increase the data quality and coverage rates in the SPR.

The SPRNG is a good example of how nurses can be supported by each other and share experiences, skills and knowledge but also operate their own project.

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