SFEBES2025 Poster Presentations Neuroendocrinology and Pituitary (48 abstracts)
Analysis of qualitative patient feedback on a novel pilot model for group education for nutritional/dietary advice and symptom management in neuroendocrine neoplasms (GEDNEN course) in an ENETS centre of excellence
Hannah Bissoon 1 , Ee Wen Loh 2 , Zahra Ahmed 1 , Luca Dancyger-Stevens 1 , Tak Wai Ho 3 , James Wimbury 3 , Yasmin Chotai De Lima 4 , Shamiso Masuka 2 & Alia Munir 2
1University of Sheffield, Sheffield, United Kingdom; 2Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom; 3Cambridge University Hospitals NHS Foundation Trust, Cambridge, United Kingdom; 4Royal Free London NHS Foundation Trust, London, United Kingdom
Background: Group education as a concept in healthcare has mainly been used in diabetes mellitus and health optimisation pre-surgery. In Sheffield ENETS centre of excellence, we have piloted a bespoke course focussing on nutritional and dietary education for patients with neuroendocrine neoplasms (NEN).
Aim: To ascertain if the GEDNEN course is suitable and/or improves general accessibility to experts with specific analysis of qualitative patient feedback.
Methods: This 4-hour face-to-face pilot session included patients with small bowel and non-functional pancreatic NEN group with stable disease. Initial overview was delivered by a NEN consultant, treatments and side effects by a specialist NEN nurse, nutritional needs overview with a practical session delivered by three specialist NEN dietitians. Bespoke and validated pre- and post-course questionnaires were completed by all participants.
Results: There were 15 participants: 10 had small bowel NEN and 5 had pancreatic NEN. 80% of participants had not received specialist education previously. 99% reported they were extremely happy or happy to be in a group session. 100% found the group education useful, with 40% being extremely happy and 60% happy with this. 86% learnt something new. 92% were extremely happy or happy to ask questions freely in the group session. 100% of participants reported that they would attend another group education course in the future. After the course 73% felt extremely happy or happy to manage their NEN related nutritional needs. All patients felt more empowered to manage their NEN dietary health after the course and would recommend the course.
Conclusion: Qualitative feedback in this pilot has shown 100% of patients found it useful and would attend again with 86% learning something new. Overall, the participants thought that the speakers were knowledgeable, very clear and gave an informative and excellent presentation. This is an acceptable form of education.
Volume 109
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Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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