Renaltu, a web page to satisfy the information needs on primary tubulopathies for patients and care provider

Garcia Frank Hernandez; Pena Helena Gil; Suarez Julian Rodriguez; Garcia Jose Lopez; Redondo Pablo Martino; Perez Rocio Fuente

doi:10.1530/endoabs.110.EP285

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Endocrine Abstracts (2025) 110 EP285 | DOI: 10.1530/endoabs.110.EP285

ECEESPE2025 ePoster Presentations Bone and Mineral Metabolism (142 abstracts)

Renaltú, a web page to satisfy the information needs on primary tubulopathies for patients and care provider

Frank Hernández García ^1,2 , Helena Gil Peña ^2,3 , Julían Rodríguez Suárez ^1,2,3 , José López García ⁴ , Pablo Martino Redondo ³ & Rocío Fuente Pérez ⁵

Author affiliations

¹Universidad de Oviedo, Morfología y Biología funcional, Oviedo, Spain; ²Instituto de Investigación Sanitaria del Principado de Asturias, Grupo de Investigación en Pediatría, Oviedo, Spain; ³Hospital Universitario Central de Asturias, AGC Infancia y Adolescencia, Oviedo, Spain; ⁴Universidad de Oviedo, Medicine, Oviedo, Spain; ⁵Universidad Europea de Madrid, Facultad de Enfermería y Ciencias de la Salud, Madrid, Spain

JOINT2597

Introduction: Primary tubulopathies are a group of hereditary disorders affecting renal tubular function, leading to electrolyte imbalances and mineral homeostasis alterations. Among them, X-linked hypophosphatemic rickets (XLH) is the most common hereditary form of rickets, characterized by persistent hypophosphatemia due to excessive FGF23 activity, resulting in impaired bone mineralization and growth retardation. Renaltube has established itself as a key scientific platform in the study of these disorders, while the development of RenalTú, a web page designed to satisfy the information needs of patients and care providers, represents a significant step toward improving access to specialized knowledge and resources.

Objectives: To describe the development and functionality of RenalTú as an interactive digital tool for patients with primary tubulopathies.

Methods: The development of RenalTú was structured into two key areas: technological development and educational content creation. The platform was designed as a responsive and user-friendly website, ensuring accessibility across multiple devices. Interactive features, such as structured disease information, educational videos, patient testimonials, and forums for community engagement, were integrated to enhance user experience. The educational content was developed in collaboration with nephrologists, geneticists, and patient advocacy groups to ensure accuracy and relevance. Additionally, clinical guidelines and ongoing clinical trials were included to facilitate informed decision-making by patients and healthcare providers.

Results: RenalTú (www.renaltu.com) was developed as a patient-centered digital resource, providing reliable information on primary tubulopathies in an accessible and interactive format. It enhances disease awareness, treatment adherence, and patient-provider communication.

Conclusions: RenalTú serves as an essential resource to bridge the knowledge gap for patients and caregivers dealing with primary tubulopathies, facilitating self-management and specialist interactions.