IES2025 Research, Audit and Quality Improvement Projects E-Posters (60 abstracts)
Embedding young adults’ voices in diabetes research: the D1 Now cluster RCT and the role of the young adult panel
Dr Aswathi Surendran 1,2 , Dr Eimear Morrissey 3,4 , Prof Molly Byrne 2 , D1 Now YAP 1 , D1 Now YAP Mentors 1 & Prof Sean F Dinneen 1,5
1School of Medicine, University of Galway, Ireland, H91 TK33; 2School of Psychology, University of Galway, Galway, Ireland, H91 TK33; 3Centre for Health Research Methodology, School of Nursing and Midwifery, University of Galway, Galway, Ireland, H91 TK33; 4Institute of Clinical Trials, College of Medicine, Nursing and Health Sciences, University of Galway, Galway, Ireland, H91 TK33; 5Centre for Diabetes, Endocrinology and Metabolism, Galway University Hospitals, Galway, Ireland
Background and aim: Young adults (YAs) with type 1 diabetes face self-management challenges unique to this life stage. The D1 Now definitive cluster randomised controlled trial assesses the D1 Now intervention, which consists of the Agenda Setting Tool and Support Worker, to improve clinical effectiveness and psychosocial outcomes. A central feature of our work is the Young Adult Panel (YAP), a group of young adults with lived experience, established in 2014, who are part of the research team and co-design study processes.
Methods: The trial will involve 348 young adults across 12 diabetes centres in Ireland. The YAP’s role is action-oriented and continuous: refining study procedures, co-developing strategies to maintain participant engagement, and shaping accessible, YA-friendly digital platforms and study communications. YAP members lead initiatives such as online engagement tools and tailored retention activities designed to sustain motivation over the entire trial duration.
Results: Trial set-up is actively ongoing. YAP-driven strategies, such as co-designed participant-facing materials, digital resources, and a robust social media presence, have laid a strong foundation for participant engagement and long-term retention.
Conclusion: Embedding YAP’s insights and actions throughout all phases ensures a trial grounded in authenticity and relevance. This active partnership strengthens potential sustainability and effectiveness, setting a benchmark for future youth-centred research.
Volume 115
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Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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