Searchable abstracts of presentations at key conferences in endocrinology

ea0080p10 | Abstracts | UKINETS2021

Addressing professional development needs in neuroendocrine cancer nursing

Jervis Nikie , Bouvier Catherine

Adult Neuroendocrine Cancer nursing is a highly specialised field where expertise in both knowledge and appropriate skills can make a significant contribution - ‘especially in the promotion and maintenance of high standards of practice, education for the patient’ and the application of safe evidence-based knowledge and skills ‘the patient requires when diagnosed with a rare disease’ (1). Whilst considered rare, Neuroendocrine Cancer has seen an exponential ...

ea0068nets2.1 | Daily Clinical dilemmas in NEN & NEN disease from patients’ perspective | UKINETS2019

Holistic care for NEN patients: updates from the NET Patient Foundation, Mrs Catherine Bouvier (NPF)

Bouvier Catherine , Jervis Nikie

Holistic care for NEN patients:: Holistic care is a ‘gold-standard’ model, defined as that which treats the whole person. A key factor to ensure that all the cogs in the NEN pathway work collaboratively, towards this goal, is to ensure that we are all listening to the perspective of the person living with NEN and that we focus conversations on Quality of Life: what it means to each individual and how we can, together, best help them manage and live well with their il...

ea0049ep192 | Endocrine tumours and neoplasia | ECE2017

Cancerous neuroendocrine vs endocrine tumours: broad commonalities and differences

Jervis Nicola , Bouvier Catherine

Endocrine cancers are defined, by European Taskforce on Endocrine Cancer, as malignant tumours arising from endocrine organs including thyroid, adrenal, parathyroid, pituitary, as well as neuroendocrine tumours in general.Cancerous neuroendocrine tumours arise from neuroendocrine cells which can be found within the endocrine system: in the pituitary, pineal, parathyroid and (medulla of the) adrenal gland, or more scantily within the thyroid, pancreas, ov...

ea0049ep746 | Endocrine tumours and neoplasia | ECE2017

NENs, NETs, NECs: Accessing expert care

Jervis Nicola , Bouvier Catherine

Endocrine tumours are a heterogenous group of tumours, that are frequently described as “complex”, “diverse”and, with few exceptions, “rare”. According to the Giwice Position Statement (as issued by the European Task Group for Endocrine Tumours): Endocrine Tumours are defined…as malignant tumours arising from endocrine organs including thyroid, adrenal, parathyroid, as well as neuroendocrine tumours in general. The research supported recomme...

ea0060p06 | (1) | UKINETS2018

Identifying information and support needs for patients with Merkel Cell Carcinoma

Devlin Lindsey , Catherine Bouvier

Background: Merkel cell carcinoma (MCC) is a neuroendocrine tumour of the skin. It is a rare, highly aggressive cancer with a high propensity for recurrence and an increasing incidence rate. Feedback from patients and clinicians suggests there is very little accessible MCC specific patient information and support available. To improve patient access to accurate and reliable information and support, the NET Patient Foundation are developing existing services to provide MCC spec...

ea0072oc2 | Oral Communications | UKINETS2020

COVID19 & My Care: NCUK community experience

Jervis Nikie , Bouvier Catherine

Background: March 2020 saw the UK enter lockdown in response to the global COVID-19 pandemic. The impact on healthcare availability and resources was immediate.To better understand the impact these events had on the Neuroendocrine Cancer community – NCUK undertook a snapshot consultation.Methods: During May–June 2020, 366 Neuroendocrine Cancer patients across the UK completed an online survey, disseminated via social media and the NCUK patient ...

ea0072p9 | (1) | UKINETS2020

Zoom-ing in on natters: Neuroendocrine cancer UK (NCUK) patient support groups during COVID pandemic

Jervis Nikie , Bouvier Catherine

Background: NHS England’s Five Year Forward View refers to peer support as one of the ‘slow burn, high impact’ interventions that should be seen as ‘essential’ to the future of healthcare services, with evidence pointing to benefits in both physical and psychosocial well-being of attendees and potential cost savings to healthcare through improved health condition self-management. However the COVID pandemic has meant that groups cannot currently meet fa...

ea0052p10 | (1) | UKINETS2017

Neuroendocrine Tumour (NET) patients experiences of support in the community setting across the cancer treatment trajectory

Devlin Lindsey , Jervis Nikie , Bouvier Catherine

Background: Neuroendocrine tumours (NETs) and carcinomas (NECs) are a heterogenous group of malignancies, with no common clinical pathway, but previous study has highlighted a common need for effective, well-timed support. There is geographic variation in the availability and provision of specialist NET cancer services across the UK and this is reflected in the diverse patient experiences reported.Service improvement: To improve the patients journey, the...

ea0068oc3 | Abstracts | UKINETS2019

Incidence and prevalence of neuroendocrine neoplasms reported in England from 2015 to 2017

White Benjamin E , Bouvier Catherine , Genus Tracey , Rous Brian , Srirajaskanthan Rajaventhan , Chandrakumaran Kandiah , Ramage John K

Introduction: Previously published UK Cancer Registry data showed incidence of Neuroendocrine Neoplasms rising between 2001 and 2015. This was higher than had been thought (Genus et al.). We report more recent data with more accurate coding (ICD-O-3).Aim: To analyse National Cancer Registration and Analysis Service (NCRAS) data on Neuroendocrine Neoplasias (NENs) in England including years 2015–2017.Methods: Public He...

ea0072p6 | (1) | UKINETS2020

Metachronous neuroendocrine neoplasms in England 2013–2015

White Benjamin E , Genus Tracey , Bouvier Catherine , Ramage John K , Srirajaskanthan Rajaventhan

Introduction: The aetiology of NENs vary; some are sporadic, others familial. An association between index NENs of the mid gut (ileum and colon) with subsequent colorectal primaries has been reported.Aim: We determined to evaluate the relationship between the diagnosis of an index primary malignancy and subsequent diagnosis of NEN.Methods: A population-based retrospective cohort study was under taken for persons with NEN diagnosis ...