Searchable abstracts of presentations at key conferences in endocrinology

ea0077ns1.3 | Acromegaly | SFEBES2021

Addressing the unmet psychosocial needs of patients with treated Acromegaly

Jackson Sue

Each patient experience of diagnosis and treatment for Acromegaly is unique. For some the process is simple and straightforward, for others it is more challenging. For patients the condition is more than just the identification and treatment of the tumour: there are several important psychosocial issues with potentially far-reaching effects. Patients may feel disempowered from raising concerns about the wider psychosocial aspects of Acromegaly with healthcare ...

ea0035s4.3 | Endocrine Nurses Session 1: Craniopharyngioma | ECE2014

Psychological aspects of living with a pituitary related condition

Jackson Sue

There is estimated to be 60 000 people with pituitary disease in the UK. Reports have identified a number of concerns and unmet psychological needs in this patient population. Many patients with pituitary disorders remain isolated, alienated, and distressed. Research has suggested that patient distress may not be identified by healthcare professionals (HCPs), resulting in significant morbidity, additional use of primary and secondary care services, and patient dissatisfaction ...

ea0059p151 | Nursing practice | SFEBES2018

The varied psychological support Acromegaly patients receive across the UK and what they believe can help improve their care; A patient perspective

Irwin Holly , Jackson Sue

Introduction: When reviewing data from an Acromegaly focus group, it highlighted the lack of psychological support they receive. I became interested to see how psychological support varies geographically across the UK. I also wanted to identify what patients viewed as the priority in order to improve their Acromegaly care.Methods: 1. 7 Acromegaly patients from across the UK, with a mix of age, sex and treatment experience were filmed as part of a focus g...

ea0020oc6.4 | Paediatric Endocrinology/Bone | ECE2009

Appearance matters: the impact of perceived altered appearance as a result of Klinefelter's syndrome on psycho-social functioning

Jackson Sue , Morris Marianne

Background: Klinefelter’s syndrome (KS) is a genetic condition affecting men with the potential to severely reduce their testosterone levels and affect their physical appearance. Being a syndrome there are a variety of different symptoms which individuals may experience to a great or lesser extent. While much research has been directed at understanding the cognitive impact of KS much less research has been undertaken considering the psycho-social impact of living with the...

ea0048p7 | Poster Presentations | SFEEU2017

Setting a weight loss or clothes size goal following laparoscopic adjustable gastric banding: Does this impact on outcomes?

Hancock Jude , Jackson Sue , Johnson Andrew

Background: Setting a goal helps individuals achieve their long-term aims. A goal that challenges an individual, but at the same time is achievable, is likely to be attained. Candidates for laparoscopic adjustable gastric banding (LAGB) may have different long-term goals, which may include achieving a particular weight loss or clothes size.Methods: 39 individuals undergoing LAGB were prospectively monitored for 5 years. Participants were weighed, had a 1...

ea0044p3 | Adrenal and Steroids | SFEBES2016

In denial? Patient perspectives on adrenal crisis management

Hacker Alice , Crown Anna , Jackson Sue

Background: Understanding hypoadrenal patients’ perceptions of adrenal crisis is vital in the prevention of this endocrine emergency. This study explored the experiences, knowledge and attitudes of hypoadrenal patients to adrenal crises and their prevention.Method: A cross-sectional qualitative study using structured interviews with patients with primary and secondary adrenal insufficiency. Data were analysed using thematic content analysis.<p c...

ea0044p176 | Obesity and Metabolism | SFEBES2016

Five years on: A qualitative exploration of beliefs prior to and following gastric banding using a Theory of Planned Behaviour framework

Hancock Jude , Jackson Sue , Johnson Andrew

Introduction: Despite the usefulness of using theory to underpin analysis, there is a paucity of literature applying this to experiences of gastric banding (GB) surgery. The Theory of Planned Behaviour (TPB) is useful for exploring beliefs underlying behaviour. The present study uses a TPB framework to explore individuals’ beliefs towards GB both prior to and five years post-surgery.Methods: A prospective longitudinal qualitative study. Semi-structu...

ea0038p309 | Pituitary | SFEBES2015

Developing a pituitary distress thermometer (PDT) – a means to improve patient quality of life

Jackson Sue , Norman Alyson , Crown Anna

Introduction: Patient distress may be associated with a reduced quality of life (QoL), poor adherence to treatment and lower satisfaction with medical care. Best practice guidance recommends that distress is assessed at key points within the patient-care pathway. The aim of this study was to develop a pituitary-specific distress assessment tool.Method: Working with the Pituitary Foundation, a Wellbeing Survey was generated, comprising 36 pituitary-specif...

ea0038p328 | Pituitary | SFEBES2015

Development of a patient-reported outcome measure for pituitary surgery

Suren Ali Nikzad , Crown Anna , Jackson Sue

Background: Healthcare organisations worldwide are making use of patient-reported outcome measures (PROMs) to assess the impact of care received on patient’s health-related quality of life.Aim: A cross-sectional pilot study designed to evaluate the suitability and validity of a proposed pituitary PROM questionnaire pack for patients having pituitary surgery.Methods: The PROM pack comprised five questionnaires focused on sympto...

ea0035p474 | Diabetes therapy | ECE2014

Is psychological support the missing ingredient in successful outcomes for pancreas transplantation: the importance of recognising and managing the ‘competitive patient'

Jackson Sue , Gleeson Kate , Smith Richard

Introduction: To date, psychological research on pancreatic transplantation has focused mainly on illness and quality of life. Research has been predominantly quantitative rendering it impossible to identify specific psychological issues faced by patients. Uniquely, this work considered post-transplant issues in the context of the pre-transplant psychological burden of patients with T1DM.Methods: 21 individuals with T1DM were interviewed (11 males; five ...