We adapted holistic needs assessment tool used in oncology setting to create a simple tool to assess the learning need of people with adrenal insufficiency. This simple tool consists of 17 items and it allows endocrine nurse educators to obtain a quick assessment on the self-care management knowledge and skill of people with adrenal insufficiency before embarking on adrenal education.
The tool 17 items are:
Understanding of adrenal insufficiency
Recognising adrenal crisis
Awareness of support groups (for emotional and psychological needs)
Oral medication dosing
Effects of over replacement
Effects of under replacement
Sick Days Rules
Long term effects of replacement
Exercise & activity
Relationship and intimacy
Education course available.
We also collected over 30+ data from cohorts attended our clinics and ADSHG members attending our adrenal education training. These data consist of both people with adrenal insufficiency and their friends and carers. This also allow endocrine nurse educator to tailor their education priorities as well as planning the subsequent follow up training required for people with AI.
Conclusion: A simple tool to use in clinic setting to obtain a quick assessment on the learning needs of people with AI and their carer.