BSPED2021 Poster Presentations Diabetes (21 abstracts)
Children and young people with type one diabetes and their families experience of remote clinics
J Thirunavukkarasu 1 , Vipan Datta 2 , Ravi Alanoor 2 , Jo-Anne Veltmann 2 , Suzanne Lee 2 , Jo Mower 2 , Heather Rix 2 , Louisa Fear 2 , Faye Stubbs 2 , Kris Howell 2 , Jo Derisley 2 , Garry John 1 , Emma English 1 & Emma A Webb 1,2
1University of East Anglia, Norwich, United Kingdom; 2Jenny Lind Children’s Hospital, NNUH, Norwich, United Kingdom
Background: Children and young people (CYP) with Type 1 diabetes are offered 4 face to face appointments annually. During the COVID-19 pandemic these were delivered virtually.
Objective: We conducted a survey to assess patient and carer satisfaction with the remote diabetes service.
Methods: Research ethics approval was obtained. The survey was distributed to 280 CYP and their families; one response per family was collected. Data on; age, time since diagnosis, method of diabetes management, feedback on video “attend anywhere” consultations and suggestions for improvements were recorded.
Results: We received 65 responses; 12 from CYP and 53 from parents/carers. Mean age of CYP was 11.4 years; mean time since diagnosis was 5.4 years. Sixty eight percent of respondent’s used an insulin pump and 83% CGMS or Libre sensor. Ninety three percent were able to connect to the attend anywhere platform easily and maintain good internet connection (89.0%). Eighty seven percent reported good interaction with healthcare professionals and 89.0% felt able to raise concerns remotely. Fifty eight percent of respondent’s wanted to continue video consultations following the pandemic with 33% wanting to return to 100% face to face appointments. Thirty six percent wanted at least 2 face to face consultations moving forward whilst 11.4% did not want to be seen face to face after the pandemic. >Written feedback on remote consultations was variable between families. Whilst some carers found remote consultations more convenient and reported that clinician’s time keeping was better in the virtual setting many families reported that it was difficult to build good rapport and engage during the virtual consultations and that appointments often felt impersonal. A key theme was CYP needing some face to face appointments in order to build a trusting relationship with healthcare professionals.
Conclusion: Whilst from the outset it may seem that it is more convenient for carers and the MDT to deliver a mix of face to face and virtual appointments, feedback demonstrated that people’s experiences with our remote service was highly variable. It is therefore important to deliver individualised care plans that meets every patient’s specific needs.
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Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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