BSPED2022 Poster Presentations Diabetes 3 (8 abstracts)
Protocol for a feasibility study and process evaluation of a psychosocially modelled diabetes education programme for young people with type 1 diabetes: the yes study
Judith Parsons 1 , Dulmini Kariyawasam 2 , Tayana Soukup 1 , Nick Sevdalis 1 , Maria Baldellou Lopez 1 , Rita Forde 1 , Khalida Ismail 1 , Marie Jones 2 , Martha Ford-Adams 3 , Nardos Yemane 2 , Siobhan Pender 2 , Stephen Thomas 2 , Trevor Murrells 1 , Alex Silverstein 4 & Angus Forbes 1
1King’s College London, London, United Kingdom; 2Guy’s and St. Thomas’ NHS foundation Trust, London, United Kingdom; 3King’s College Hospital NHS Foundation Trust, London, United Kingdom; 4North West London Clinical Commissioning Group, London, United Kingdom
Background: Adolescence is a challenging time for people with type 1 diabetes (T1DM), associated with worsening glycaemia and disengagement with care. Educational interventions often focus on imparting diabetes-specific skills rather than attending to some of the broader psychosocial challenges young people commonly experience. To address this, we codesigned a psychosocially modelled programme of diabetes education, named ‘Youth Empowerment Skills’ (YES), with young people with T1DM. The programme aims to facilitate a positive adaptation to life with diabetes and engagement with diabetes care through peer-based learning, immersive simulations and support from outreach youth workers. This programme has been running successfully in South London for five years, with positive feedback from young people who participated.
Aim: To test the feasibility (acceptability, implementability, recruitment and completion) of the YES programme, and estimate its efficacy in relation to metabolic (glycaeted haemoglobin), healthcare (emergency and hypoglycaemic events) and psychosocial (diabetes self-management, confidence in managing healthcare, illness perception and quality of life) outcomes.
Method: We will conduct a feasibility randomised controlled trial (waiting-list design) with integrated process evaluation in diabetes centres in London, UK, which serve socioculturally diverse populations. Fifty young people with T1DM (aged 14–19 years) will be randomly allocated to either the YES intervention or a waiting-list control. Randomisation acceptability will be assessed with provision for a preference allocation. Outcomes will be evaluated at 6 months, at which point the waiting list participants will be exposed to the YES programme with further follow-up to 12 months. A simultaneous process evaluation will use a mixed-methods approach collecting both qualitative and quantitative data from patients and providers to establish early implementability of YES.
Results: The study findings will be used together with a review event to optimise intervention components, outcome measures and recruitment methods to inform a subsequent definitive trial.
Conclusion: There is a need to develop and test new approaches for young people with T1DM that support them with the significant psychological and social challenges they experience. This study will help establish trial feasibility, indications of clinical effectiveness and implementation success factors of a co-designed psychosocially modelled intervention to support young people with T1DM.
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Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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