SFEBES2025 Nurse Session Nurse Session 2 (3 abstracts)
BHRUT, Essex, United Kingdom
From a patients first experience of a symptom, through their journey to diagnosis, there is often very little support available for rare conditions such as Acromegaly. Patients know they are unwell; they are looking for answers, but these can be slow to come and for some diagnosis can take many years. From the day a patient meets their endocrine specialist nurse (ESN) they have an advocate who will help to explain their journey so far and the future one take lies ahead of them. Patients living with Acromegaly have many challenges. The ESN is vital in supporting patients through the different treatment phases of this life changing condition.