Endocrine Abstracts

Background: The Patient Support Group Network Group (PSGNG), established in 2021, is comprised of representatives from the Society for Endocrinology (SfE) affiliated Patient Support Groups (PSG), Clinical and Nurse Committees.

Aim: The main aim of the PSGNG is to encourage and support collaboration between the SfE and affiliated PSG whilst highlighting the valuable work of the PSG in supporting clinicians and patients.

Outcomes: Main developments in 23/24

• Utilisation of MIMS to share learning across a wider platform, active engagement in MIMS live events, e.g. British Thyroid Foundation webinars • Raising awareness – MIMS, PSG page in The Endocrinologist, PSG Linktree: https://linktr.ee/PSGs • Highlighting nonaligned endocrinology resources • Joint PSG collaboration enabling shared expertise and wider audience • New affiliated SfE PSG, Verity and TEDct

PSG Network Group Accomplishments over the past 3 years

• Improved collaboration, sharing expertise and communication via PSG network meetings/email, Facebook page and PSG Linktree • Formal SfE affiliation process for PSG • Endorsement of PSG webinars via Clinical Committee and wider reach via MIMS • PSG resources linked via SfE Clinical Resource Hub and Events Page • Working group for GP collaborations established • Engagement with NICE and NIHR representatives, e.g., NICE Public Involvement Programme • SfE publications, e.g., The Endocrinologist • Active participation in SfE activities, e.g., Data Registries, BES • PSG collaboration to create joint resources for Health Care Professional (HCP) conferences, e.g. MIMS Learning Live • Regular updates between PSG Network, Clinical and Nurse Committee • Developing tools for clinical use to mutually benefit HCP and Patient, e.g., PSG QR codes poster

Conclusion: The SfE PSGNG is a symbiotic forum. It allows direct engagement between the SfE and PSG enabling and developing education on disease-specific areas for both endocrinology and non-specialist HCP, improved patient centred quality of care and highlighting the value of PSG to the Endocrine community.