ECEESPE2025 ePoster Presentations Growth Axis and Syndromes (132 abstracts)
Integrating patient-generated health data into growth hormone therapy: perspectives from the paediatric endocrinologists in the gulf cooperation council
Walid Kaplan 1 , Abdullah Elherbish 2 , Abdullah AlJneibi 3 , Afaf Alsagheir 4 , Angham Almutair 5 , Aqeel Farooque 6 , Asma Deeb 7 , Bassam Bin Abbas 8 , Jamal Al Jubeh 9 , Najya Attia 10 , Nandu Thalange 11 , Sareea Salem Al Remeithi 12 , Paul Dimitri 13 , Octavio Rivera-Romero 14 & Ekaterina Koledova 15
1Tawam Hospital, Department of Pediatrics, AI Ain, United Arab Emirates; 2Al Habib Medical Group, Riyadh, Saudi Arabia; 3Danat Al Emarat Hospital, Abu, United Arab Emirates; 4King Faisal Specialist Hospital and Research Center, Department of Pediatric Endocrinology, Riyadh, Saudi Arabia; 5King Abdulaziz Medical City, King Abdullah Specialist Children’s Hospital, Ministry of National Guard-Health Affairs, Department of Pediatric Endocrinology, Riyadh, Saudi Arabia; 6Al Qassimi Hospital, Department of Pediatrics, Sharjah, United Arab Emirates; 77Sheikh Shakhbout Medical City & College of Medicine and Health Sciences, Khalifa University, Abu Dhabi, United Arab Emirates; 8King Faisal Specialist Hospital and Research Center, Department of Pediatrics Endocrinology, Riyadh, Saudi Arabia; 9Sheikh Khalifa Medical City and Khalifa University College of Medicine, Abu Dhabi, Saudi Arabia; 10King Abdulaziz Medical City, Department of Pediatric Endocrinology, Jeddah, Saudi Arabia; 11Al Jalila Children’s Specialty Hospital, Dubai, United Arab Emirates; 12Sheikh Khalifa Medical City, Division of Endocrinology, Department of Pediatrics, Abu Dhabi, United Arab Emirates; 13Sheffield Children’s NHS Foundation Trust, The Department of Paediatric Endocrinology, Sheffield, United Kingdom; 14Universidad de Sevilla, Avda, Reina Mercedes, Electronic Technology Department, Seville, Spain; 15Merck Healthcare KGaA, Global Medical Affairs, Cardiometabolic and Endocrinology, Darmstadt, Germany
JOINT1260
Background: The increasing application of digital health tools has enabled patient generated-health data (PGHD) to play a crucial role in clinical support and decision-making. However, data integration into practice remains a challenge, especially for managing long-term conditions such as growth disorders requiring, growth hormone (GH) therapy. Identifying key factors to support successful implementation of PGHD in clinical practice is essential to address adherence gaps and improving growth outcomes for children requiring GH in the Gulf Cooperation Council (GCC) region.
Aim: To develop recommendations for improving adherence to GH therapy and clinical outcomes based on the identified factors for PGHD integration into clinical workflows.
Methods: A participatory workshop was conducted on March 2, 2024, in Dubai, UAE, using the Nominal Group Technique (NGT). Twelve paediatric endocrinologists with significant experience in paediatric growth disorders and digital health from the GCC region along with a workshop chairman and 2 moderators, participated in the structured activity-based workshop. Discussions were guided by three clinical scenarios: naïve (recently diagnosed) patients, poor adherent, and poor responders. The experts individually identified and presented various types of PGHDs they considered relevant (silent generation and round robin), discussed them and each expert selected the top 5 PGHDs in order of relevance by voting.
Results: A total of 22 influencing factors for PGHD integrations were identified. In the first ranking round, the top factors were demographic data (21 points), patient feelings about treatments and satisfactions (19 points), and social background (17 points). Other significant considerations included reasons for missing injections and education needs (15 points each). The second ranking round prioritized factors, with social background (35 points) receiving the highest score, which included insurance, family support, and social structure. Injection context (34 points), including timing, comfort, and technical support during administration was the second highest ranked factor. Patient feelings about treatments and satisfaction (30 points) highlighted the importance of motivational and emotional aspects of adherence. The final discussion focused on determining how the identified factors could be integrated into clinical practice to support GH therapy.
Conclusion: The study highlights the significant role of the social background, treatment logistics, and patient satisfaction in promoting PGHD integration into GH workflows. Using region-specific digital solutions and collaborative healthcare practices amongst physicians, nurses, pharmacists and Patient Support Program members can improve adherence and patient outcomes in the GCC region.
Volume 110
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Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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