Issues: In developing nations diagnosis of diabetes brings mental-trauma/depression in family. Focused treatment for pediatric age-group is unavailable in developing-countries. 26% of diagnosed diabetics are childrens. Adequately trained physicians/Nurses in issues of pediatric-diabetes provide continuity of care, relief from depression and smooth transition from diagnosis to treatment. Qualitative collaborative relationship between these makes diabetics life bearable. Our NGO-project highlights significance of relationship between nurses and diabetic-children in community clinic setup of rural India. For Diabetes, its assumed that depression is inevitable sequel to diagnosis. Retrospective analysis of past studies showscounselling improves QOL & attitude towards diabetes-treatment.
Aims: To describe care issues in diabetic-childrens. Observe/modify nature of relationship between nurse and child. To evolve comprehensive treatment plan for patients and families.
Methods: A retrospective analysis of data base from 7 rural health-clinics. Specialized therapy/support to pediatric-age-group not available at any center. Total 117 childrens [413 years] diagnosed with diabetes. 23 had additional endocrine/metabolic problems. Nursing/medical care plan analyzed. No specialized trained personal in rural/tribal India. Opinion/needs from patients families collected on feedback questionnaire. Then we trained 10 nurses & 2 physicians for handling pediatric cases [4 weeks training].
Results: Out of 117, 41 discontinued Rx due to improper counseling/guidance. 3 died. Patient/familys feedback highlights: Better access to newer drugs-delivery-systems, psycho-social support, follow-up-plan. Nurses/physician be sensitized in pediatric care-issues. Main issues of concern were:  illness and coping with their feelings.  Initial impact of diagnosis and a search for solution? Expectations for future life & its quality?  Concerns of cost of RX  Availability of proper follow-up centers in rural areas of developing nations.
Conclusion: Multifaceted Relationship between physician/nurse and Diabetics childrens is crucial. Follow-up must be given priority. This relationship provides better continuity of treatment. We show concerns/difficulties while working in Asian set-up for pediatric diabetes to international experts/seniors at ECE-2019-congress.
18 - 21 May 2019
European Society of Endocrinology