Searchable abstracts of presentations at key conferences in endocrinology

ea0032p1019 | Thyroid (non-cancer) | ECE2013

Differential item functioning of the thyroid-specific quality of life questionnaire ThyPRO

Watt Torquil , Hegedus Laszlo , Bonnema Steen Joop , Bjorner Jakob Bue , Groenvold Mogens , Rasmussen Ase Krogh , Feldt-Rasmussen Ulla

Objective: Thyroid diseases have been shown to affect quality of life. A thyroid-specific patient-reported outcome (PRO) measuring quality of life, the ThyPRO, has recently been developed and validated using classical clinic- and psycho-metric methods. The purpose of the present study was to apply modern psychometrics to validate the measure as the extent of differential item functioning (DIF) according to sex, age, education and diagnosis, within the ThyPRO.<p class="abst...

ea0056p1082 | Thyroid (non-cancer) | ECE2018

How should thyroid-related quality of life be assessed? Standard recall measures compared with here-and-now measures

Boesen Victor Brun , Feldt-Rasmussen Ulla , Bjorner Jakob Bue , Cramon Per , Gronvold Mogens , Nygaard Birte , Rasmussen AEse Krogh , Vilsboll Tina , Watt Torquil

Introduction: Some methodologists have raised concern about the validity of the standard method of assessing patient-reported outcomes, i.e. retrospective questionnaires. Repeated momentary measurements have been introduced to avoid recall bias and provide ecological validity. Although having theoretical advantages, the measurement properties remain unsubstantiated. This study examines the relationship between the retrospective thyroid-related quality of life patient-reported ...

ea0090rc9.1 | Rapid Communications 9: Adrenal and Cardiovascular Endocrinology 2 | ECE2023

Symptoms of glucocorticoid-induced adrenal insufficiency – A systematic evaluation of clinician- and patient-reported symptoms and their rated relevance

Lund Marie Louise , Bjorner Jakob Bue , Al-Jorani Hajir , Boesen Victor Brun , Dreyer Anja Fenger , Boggild Hansen Simon , Jorgensen Nanna Thurmann , Klose Marianne , Tei Randi , Watt Torquil , Feldt-Rasmussen Ulla , Borresen Stina Willemoes

Context: Glucocorticoid-induced adrenal insufficiency is the most frequent type of adrenal insufficiency, but its symptomatology has not been thoroughly studied.Objective: To describe the predominant symptoms experienced by patients with glucocorticoid-induced adrenal insufficiency and rate these symptomsÂ’ significance for patientsÂ’ perceived need for supplemental hydrocortisone stress dose.Methods: The 80 symptoms in the...

ea0056p1056 | Thyroid (non-cancer) | ECE2018

Adaptation and cross-cultural validation of the Spanish version of the Thyroid-Related Quality-of-Life Patient-Reported Outcome (ThyPRO) questionnaire

Gonzalez Lleo Ana Maria , Cortes Mauro Boronat , Feldt-Rasmussen Ulla , Perez Carlos Rodriguez , Rasmussen AEse Krogh , Plasencia Yaiza Lopez , Hegedus Laszlo , del Pino Alberiche Ruano Maria , Bonnema Steen Joop , Arencibia Dunia Marrero , Groenvold Mogens , Bjorner Jakob Bue , Watt Torquil

Introduction: The thyroid-related quality-of-life patient-reported outcome ThyPRO questionnaire is the most widely used tool for measuring health-related quality of life (QoL) in patients with benign thyroid diseases. The aim of this study was to adapt and validate a Spanish version of the ThyPRO.Methods: The ThyPRO consists of 85 items, grouped in 13 scales and one single QoL item. Scales cover physical and mental symptoms, well-being and function, soci...